This story is about one of the biggest health scares I’ve had in my life so far. Thank heavens the Lord was in control. The Saturday before last on April 29th, 2023 I got out of bed to get ready for the wedding I was shooting that day and immediately fell over with extreme dizziness. I thought maybe I just got out of bed too fast, so I tried walking a few more steps and had to brace myself against the wall. I blinked hard and tried focusing on something stationary in front of me. But I just couldn’t get the room to stop spinning. I made my way back to the bed and told me husband that something was really wrong. I was so dizzy and felt like I was going to throw up. My mouth was so dry and I was starting to drip from a cold sweat that was quickly developing. My hands were shaking, my legs were so weak and shaky, I felt like death. I kept repeating to Dustin “Something is really wrong. Somethings wrong with me. Babe, I’m really scared… something is bad wrong.”
I asked him to google all the symptoms happening and see if it could be my blood sugar. It seemed like maybe that could be it. The internet recommended bananas and citrus fruits. I forced myself to eat some and waited the 30 minutes it promised I would feel better and nothing changed. I kept gagging over the toilet trying not to throw up. All I could think is it’s not 8am and I am supposed to leave my house for my wedding at 9:30. Symptoms have not gotten even a little bit milder. In fact, at 8:15 I ended up throwing up everything on my stomach. I finally called the express clinic and scheduled their first available appointment at 9:15am. I then called my second shooter, Alaina, who is rightly still asleep with her “do not disturb” on. It went straight to voicemail. I called her sister who also happened to be the lead coordinator for the wedding we were shooting that day and told her what was happening. I asked if she could try and get ahold of Alaina, which she immediately did, and I got to talk to her 10 minutes later. I also let her know what was happening and asked if there was any way she could get to the wedding 3 hours early and be the lead shooter. She is amazing and did not even hesitate to say yes. We decided that we would both start texting every second shooter possible to find someone to assist her for the day. Not even 3 minutes later, she found Kandace with KLY Photography who was willing to drop whatever she had going on that day to serve my couple so selflessly. I called the venue coordinators at Castleton and let them know what was happening. They were both so gracious. My wedding was taken care of. I could breathe a little easier.
Next I had to tell my church that I would not be able to photograph the baby dedication that I had promised to Sunday April 30th at the 9:30 service. They, of course, were so understanding and I wasn’t there but I’m hoping they ended up finding someone to replace me. Church was taken care of. I could breathe a little easier.
Then I was supposed to be at a open house in Andersonville at a new venue that has so graciously featured me as one of the two photographers on their preferred vendor list. I was set up to take photos of the whole venue before the open house began. Photos of each booth with the respective vendor. Photos of a bride dressed up and walking around the property. Photos of a grand ribbon cutting event just before it began and even some photos throughout the open house. Additionally, I had my own booth to set up there and there was just no way I was going to be able to do any of it. I called Lori with Now & Forever Floral Design who is also The Loyston venue manager and told her what was happening. She was the first one I had talked to that said “Honey, it sounds like you have classic vertigo. My daughter has that and she does the Epley Maneuver and it’s like an immediate fix. You need your doctor to do it to you the first time though… so just go to the doctor and keep me posted”. Sunday’s open house taken care of and maybe a little glimpse into what this may be and that there may in fact be a quick fix to this terrible feeling. I could breathe a little easier.
Now I needed to get someone to my house to watch my kids so Dustin could drive me to this express clinic appointment where I would hopefully get diagnosed with Vertigo, someone would do the Epley maneuver and I may just be able to come back home, get ready for my wedding and make it for their first look. ha. little did I know. I got ahold of my mom who dropped everything she had for the day to come be with my children at our house literally all day long. Thanks mom. I could breathe a little easier.
All phone calls made, children are taken care of, all work things communicated and relieved, approximately 1000 gallons of water chugged in that time, one massive throw up, a very clumsy moment of trying to get dressed, and the slowest walk out to the car as the world spun around me and I tried not throwing up in dustin’s car as we drove 1 mile down the road to the express clinic.
This precious nurse was so tender and sweet. She took my blood pressure, didn’t tell me what it was so I’m guessing it was terrible. She took my oxygen which was at 91. I explained my symptoms and she looked so concerned. The nurse practitioner came in, asked me a few questions, checked my ears, my throat, asked about my medical history, and decided to first rule out strep, covid, and flu. All negative. She then did an EKG on me to make sure I wasn’t having a heart attack. She then asked me about things that made me more dizzy or less dizzy. At this point, if I could remain very still and stair at something stationary in front of me, I could manage to get the spinning down to a minimal disruption. My nausea wasn’t as bad, although still there. She explained to me that there was no way this was vertigo because I would never have relief. She asked if I could lay down. I told her that getting to the down position was hard and coming up from the down position was REALLY hard, but if I got down and didn’t move, I was fine. She proceeded to explain how vertigo was at it’s WORST when you laid down and there’s no way it could be vertigo because of that. She also explained how normally vertigo is just in 50+ year olds and I was far too young for this to be vertigo. She sat me up and told me that they have done everything they can and she didn’t want to scare me, but my melanoma could have metastasized in my brain and she thought it very urgent for me to go straight to the ER. I knew I had to go but I was in a bit of a denial and asked if she could give me any medicine for the dizziness or nausea. She prescribed me Meclizine, Sudafed, and a nasal spray.
We got back to the car and Dustin looked over at me and said “I guess we should go to the hospital then huh?” I looked slowly over at him with tears streaming down my cheeks and said “I guess… I just don’t want to know what they are going to say.” He put the car in park and prayed over me in that moment. I was so scared.
We decided to go home before we went to the hospital. I went straight up stairs and hugged my babies so tight and wept. All I could think was what if I have brain cancer and my babies won’t have me any longer and I don’t get to hug them like this again, with my whole body?? I know now how dramatic I was being but in the moment it felt like the only diagnosis we hadn’t ruled out already HAD to be something as terrible as brain cancer, a tumor, or a stroke.
Dustin tried to get me to eat some toast but I literally took one bite and could not possibly swallow it. We filled my water bottle and headed to Fort Sanders. We discussed where we should go and the only thing I had ever been to Fort Sanders for was to photograph a fresh 48 session. I remember it being surprisingly nice and new inside and it was close by, so we went there. There were two other people in the waiting area… that’s a good sign. I check in, tell them my symptoms, they take all of my stats, get an IV placed, and I get placed in a room within an hour. My nurse, who is probably in her mid 20’s comes in and begins chatting with me. I tell her about the express clinic and what they tested me for. I told her all of my negative tests, my normal EKG and how this couldn’t be vertigo because of all the things that weren’t happening to me. She looks at me and says “I wouldn’t rule out vertigo yet. I actually have vertigo myself and I find relief when I lay down and I’m also not 50, so it’s still possible this could be vertigo”. Jordan was her name and I can’t tell you the relief she gave me in that very first interaction we had. Five minutes later I was taken back for a CT. It went great and 30 minutes later the ER doctor was in my room and saying how my CT showed something suspicious and they wanted to do another CT scan with contrast to double check that area. 15 minutes later I was taken back for another CT with contrast and about 2 hours later, the ER doc came back in and with a lot of words basically told me that my CT was fine. There was no way to prove that this was vertigo because there’s no way for him to see that deep into my inner ear but he genuinely thought it was peripheral vertigo. He recommended I take a Meclizine and wait for about 30 minutes to see if it helps and if it does, it’s safe to say I have vertigo and if it doesn’t, we may want to do an MRI. I took one of the pills and waited for an hour. I didn’t necessarily feel any better but at this point we were ready to go, I felt that the CT would have shown the scary thing if it was there, and I had come around to the fact that despite the opinion of the express clinic nurse practitioner, I did actually have vertigo. We asked to be discharged and got home around 6:30pm.
While I couldn’t really eat, my nausea wasn’t nearly as bad and I was now able to walk without holding onto the wall. My symptoms were microscopically getting better throughout the day and this day was still April 29th, 2023. I went to bed at 7:30pm that night and slept hard all night long.
Sunday morning I began to talk to people more and tell them what was happening and I realized just how many people deal with vertigo in their every day life. Almost every single one of them have only found relief through this Epley maneuver. I had asked everyone I came into contact with to do this to me and no one felt comfortable doing it. Apparently physical therapists are the ones who do this maneuver most commonly and everyone I was crossing paths with this horrible diagnosis told me I needed to get in with a balance clinic. I called one on Sunday but of course they were closed. I left a message and called again first thing Monday morning. The one I was initially recommended to was the UT Balance & Hearing clinic. They wouldn’t be able to see me until May 26th. That was not an option. They recommended me to the Halls clinic, they couldn’t see me until May 18th. Also, not an option. They recommended me to the Hardin Valley location, they could see me the next morning at 8am. BINGO. But they needed a doctor’s referral. Which I didn’t have because I saw an ER doctor and an express clinic, neither of which gave me a PT referral. I call both of them leaving messages to PLEASE give me the referral I need to get the care I need. Crickets. I call my general doctor in hopes that he’ll just give me the referral. In chatting with his nurse she says, “he’s probably going to need to see you first” and I beg and plead with her… “this balance clinic doesn’t have another opening, can he see me today? Please, I have to get this handled… I have another wedding this weekend.” She says she’ll ask but she doubts he’ll give me one without seeing me and schedules me at his first available appointment that week which is Thursday May 4th. An hour later she calls me back and tells me he patched the referral through and he’ll see me Thursday. THANK YOU JESUS.
If I rank my symptoms as a 10 being the worst they ever were Saturday morning when I woke up and a 1 being no symptoms at all, Monday I was at about a 5. Gradually getting better but still terrible. I was taking naps during the day and going to sleep at 8pm at night and sleeping all night long. The amount of effort it took to just look at something and see it in focus. Or sit up without falling over or take a step without holding onto something was exhausting. I have always been a light sleeper and for the most part am always the first to wake up to the kids midnight wakings. But at this point, I was sleeping through any noise any child made because of just how exhausted I was and my poor, sweet husband was waking up with every kid all night long every single night. It began to wear him down and he actually began getting a head cold.
Tuesday morning comes and I am excitedly going to my PT appointment at 8am in the morning. Dustin is driving me, my mom is taking the kids to school, and I am about to be fixed… I just know it. The physical therapist tells me about the Epley Maneuver. It’s the strangest most bizarre thing ever. They turn your head in this certain direction, lay you back very quickly, and if the room starts spinning and your eyes start twitching in this one direction it tells them the crystals in your ears are out of balance and need to be put back into place. You proceed through the rest of the maneuver to put them back into place. Then you do that side again to see if they are, in fact, back into place. Then you do the other ear. My left ear was the imbalanced one, which ironically is also where the CT scan showed I had a little bit of sinusitis at the ER. She did it to my right ear and nothing happened. Did it to my left ear again and nothing happened. The rest of the day I wasn’t allowed to move my head. I needed to sleep in the upright position and not lay on my left side at all. I left that with my dizziness at about a 2. The whole day felt wonderful. I thought, this is it. I’m fixed. The PT mentioned some residual dizziness but it should go away after a couple days.
When I woke up Wednesday morning, I was back at a 4. Ugh. I felt so discouraged. However, I did realize that I was able to start driving this day and no longer had to be ushered around town like a little old lady. So that was kind of nice.
Thursday I woke up and was back at a 3. I went to my general doctor’s appointment and run through all the things I’ve done, been tested for, all the rollercoaster of emotions and symptoms. I tell him about the Meclizine and how I don’t even know if it helps enough to take me down a number on the scale I’ve been referencing this whole post. He proceeds to tell me about this teensy weensy sinus canal in the very middle of your head that is super hard to see on a CT scan and is the size of a pea. He says it doesn’t take much for that little canal to fill with mucus and if it does, it’s very hard to drain and often will become infected. He thought when he looked at my CT scans that it showed a little inflammation in that tiny little canal and if I wanted he could give me an antibiotic for a sinus infection to see if it would help. He didn’t know if it would or if it was even worth trying but wanted me to have the option. He also told me to keep doing the Epley maneuver as many times as I wanted every day all day long and it’ll help the symptoms get better and better. I didn’t realize it could still be helpful to me once the crystals were back in place. I left that appointment and waited for my meds to be filled at the pharmacy. In the mean time I had to take memory cards back to Alaina from Saturday’s wedding, take hazel to gymnastics, get straight over to the ball field to watch Grayson’s baseball game, then rush home for a call with a bride immediately after. The meds were filled around 6pm but at the point of the day I was able to pick them up, the pharmacy was closed. Crap.
Friday I took Grayson to school and got to chat with one of the teachers there. She told me about her little bout with vertigo and how she did the Epley maneuver every day, mulitiple times a day and that it’s what enabled her to get all the way back to normal. I went immediately home and did it to myself two times on my left side. Ugh. It did not help. I was back at a 6… feeling worse than I had since the morning after the hospital. I took Evelyn and Hazel to the grocery store because we were completely out of anything food related in our home. On our way back I remembered I needed to get my meds and thankfully they were ready and waiting on me. It was SUCH a hard trip that when I got home I dropped to my knees weeping and started begging God to fix me. I had a rehearsal dinner that night, a wedding the next day, and I was getting WORSE not better. I took the first dose of my antibiotic and began putting the groceries away. I fixed the kids lunch and went to pick up Grayson. I was so tired but got up and took a shower while Evie napped to prep for my rehearsal dinner that night. I got out, ate lunch, and took my second dose of my medicine. An hour later I began to do my hair and noticed that my dizziness was all of a sudden down to a 2. I went to the rehearsal dinner at 7pm and could barely notice the dizziness at all. It wasn’t until it got dark that I noticed a little bit but more like a 2.5 instead of back up to a 5.
I came home that night and finished off my medicine and woke up Saturday morning with absolutely no dizziness at all. Praise Jesus. Just in time… literally.
So why is this a Jesus story?? I want to just blatantly spell it out for you guys because it’s so evident that He was going before me with all of this!
- When I needed to get ahold of Alaina on that very first day and it went straight to her voicemail. What are the chances that her sister is the coordinator for the wedding that day? What are the chances that I even know her sister or anyone in her family? In any other case… with any other second shooter… I would have no other way to get in touch with her. I don’t know any of my other shooter’s family members. None of my other shooter’s have family in the industry. But the person I HAPPENED to have lined up that day also HAPPENED to be sisters with the lead coordinator for the wedding and would have the ability to get through to her to wake her up early and get her to my wedding on time.
- Alaina is my go to associate. If I ever have an associate need come up, I always reach out to her first. Of all the people I have associate shoot for me, Alaina and I shoot the most similar. Because she was my second shooter for this day, she was already reserved and had availability to step in for me.
- Alaina was my second shooter the weekend before on April 22, 2023 at Castleton for another wedding who had their ceremony in the same location as the April 29, 2023 wedding. This ceremony location is very rarely chosen in the weddings that I shoot at Castleton. She literally got to see me shoot a wedding the weekend before at the same venue, at the same ceremony location, with the same color bridesmaids dresses, and very similar lighting with the sun. First hand examples of how I would shoot that day and she did amazing at stepping in and shooting Bridget and Michael’s wedding on April 29th exactly how I would have done it!
- The second shooter she found was someone that she’s worked with before and loves. Alaina and I do not use the same second shooters… but Kandace with KLY Photography is actually on my schedule to second shoot for me later this year for the first time because I saw her work and thought it was amazing and like we had a similar styles. So she found someone that she was already comfortable working with and already knew how each other worked but also someone that I was already comfortable with hiring since I have technically hired her already for an upcoming wedding.
- The open house on Sunday reached out to the other photographer who had a booth at there and asked if they could fill in for me to shoot the whole pre-open house events and they could! It required them to arrive a couple hours earlier than planned a lot more time editing, but they made the sacrifice on their end and were also able to step in when I couldn’t.
- About a month before the open house, I stayed up super late several nights in a row designing a book that I would hand out at the open house. I made the book a “get to know Amanda May” title. When I was all done and about to order them, I had the thought that it was kind of pointless because I would be there in person and they could just “get to know me” by talking to me, but I had already spent all these hours designing this… I would just go ahead and print them. Come time for the open house, my dizziness had backed off enough that Dustin was able to drive me up to the venue before it started for me to just set up my table. This was Lori’s idea (the venue manager) and she welcomed me to do this even though I couldn’t stay and participate throughout the event. I got out my books and it all clicked. This is why the Lord set my heart on making these books. He already knew I wouldn’t be able to physically be there myself and it would be a great resource for potential couples to get to know me better.
- Fast forward to the fact that my nurse at the hospital also had vertigo at such a young age and gave me so much wisdom that she had gained while she was also trying to figure out the nuances of living with Vertigo.
- Then the fact that my general doctor gave me a referral without seeing me so I could get some immediate relief. I can confidently say that it is not normal for doctors to do this and I am SO thankful that he did.
- I am so incredibly thankful for the week following this insanity. It was the only week that I have had since March and is the only week that I have until July that I am not just jam packed full of sessions and events and birthdays and all. the. things. I didn’t have anything on the agenda last week until Friday night at the rehearsal dinner. I was able to work on my computer for the most part, take naps when I needed too, go to bed early, and just do lots and lots of resting. Dustin was in a position at his job that he was also able to be flexible and drive me to the doctor appointments and be home to pick up the kids from school in the afternoon. At no other point this spring would it have been this easy. Between points 1-4 and this one, the timing of it all could not have been more flexible. Granted, it could have happened in the off season when I was barely shooting at all and no weddings on the weekends, however, where would that have left room for God to be so evident?
- Finally, I almost didn’t go to my general doctor appointment on Thursday that week. He had already given me the referral to the PT, they had already gotten the crystals back into place, I just had to wait now. I had the thought that he would be where I would get more Meclizine from though if I needed it so I better go just to get that on his radar. But ultimately, that appointment is where I figured out just exactly what had caused this. Although he was guessing and didn’t know for sure himself, he was the first and only to see this tiny sinus canal on the CT scan and that it could be barely inflamed which could potentially be pushing on my inner ear and throwing all this off balance. He was the only one that was up for me even trying an antibiotic and he even gave me a refill so that if this happens again, I could automatically start the antibiotic immediately. I am SO stinking thankful that he took the time to look at my CT scan. That the Lord gave him eyes to see what he needed to see to treat me how he thought I needed to be treated. I’m just so thankful that this filling of being in a fish bowl is not permanent.
So there are the ways that I saw and felt God in control of this situation. I’m sure there will be some that read this and think it was all just coincidence. But I’m telling you friends, Jesus hears our cries and he intercedes to the Father on our behalf. He loves us and cares for us. Although he may not always provide healing or restoration as quickly as we want it or at all while we were on Earth, you can trust him that there is a greater purpose to your suffering. He will bring redemption in one fashion or another and you can trust Him.
Thank you for reading this incredibly long story. If there was even one person to find hope in this, it was worth the hours I spent typing all of this up.
This is one of my favorite stories. If you know any nonbelievers, send them here to read this and ask them to explain this any other way than Jesus. So, my dad died by suicide. He left one letter, and it was addressed to my stepmom. He had one sentence in it talking to his kids, and it was telling Laurie (stepmom) to be strong and be there for me, Leah, and Brad because we were going to have a hard time with this. That was it. I spent days and weeks following his death searching for his letter to me. I thought for sure that he dropped mine in the mail, and it was going to arrive a few days after his death. When it didn’t, I thought for sure he hid it around our house. I looked everywhere. Every day it seems I would think of a new place it could be, and every day I would have such a heavy sadness when I saw it wasn’t there. I couldn’t understand why he wouldn’t leave me a letter even if it were just to say, “I love you, and I’m sorry.” How hard would that be? For months after his death, I was so bitter about the fact that he didn’t feel it was important to leave me a letter before he left this earth forever. One day, I was talking to my cousin (more like a sister) about this bitterness in my heart. She asked me one important question. Have you prayed for it? I was immediately defensive when she asked that question. Of course I haven’t prayed for a letter. He’s gone now. Jesus can’t just make a letter appear if there’s not one to appear. Can I just tell you friends that “Jesus can’t” is never a phrase that should be spoken or thought. Jesus ALWAYS can. She continued to encourage me to pray for my letter and told me that she would pray for me to have the letter, too. In the back of my mind I knew I should do this, but my flesh was still resisting because I had been let down time after time after time going to search for this stupid letter around my house. I had become comfortable being angry about it. The next day I’m trying to put Grayson to sleep. He’s laying in his crib, and I’m sitting in the glider we have in the nursery in the darkness waiting for him to fall asleep. I start scrolling through Facebook trying to pass the time, and for some reason I get the urge to clean out the Notes app on my phone. I had accumulated over 50 notes and didn’t need half of them. They are in chronological order to start at the bottom where the oldest is. I find saved messages from Dustin at the very bottom that I start reading through. They tickle my heart and bring a smile to my face. I hadn’t read them in so so long. I make my way up the list, and I get to a work out regime that I had saved and done a few times. Then, the next one is labeled “Sometimes” as the title in the summary page of the notes app. I looked at it strangely. What is this? Here is what it read:
Sometimes
Sometimes I sit and think of you and who you are today.
Sometimes I am amazed at what God created, my Amanda May.
Sometimes I look out into the unknown and a smile sneaks on my face.
Sometimes I think that you are the perfect example of God’s Holy Grace.
Sometimes I think of when you move on and how sad I will be.
Sometimes I pray that God will reveal all that he wants you to see.
Sometimes I think of how much I love you and that comes from the heart.
Sometimes I reflect on all that I have sown and you are the greatest part.
Sometimes I hope that you will always know that I will always be there.
Sometimes you may have to remember that dad will always care.
Sometime when this life is over and we are united in heaven above.
Then and only then we will realize the true meaning of LOVE !!!
Love you so much !
Dad.
I added the bold places to point out just how intricately this letter answered all my grievances and prayers so exactly. What’s really crazy is that I do not remember ever reading this before. It was marked as last saved in 2012 onto my iPhone, but I have no memory of reading this before. I feel so embarrassed that I underestimated our holy, powerful, amazing, almighty Creator, but I’m so thankful that He loves me so much that He forgave me for this fleshly sin and met my needs anyway. I’m also so so thankful for my cousin who reminded me to pray for things that require miracles because it is amazing experiencing the miraculous power of Jesus.